The project
As an infant is born, so is the relationship between the infant and his/her parents (especially mom). The baby is born together with the dyad.
This relationship is the primary one in the infant’s life, and vital both for the survival of the infant and the wellbeing of the mother. It is also essential for the continual development of the connection between parent and infant.
However, when perinatal events modify the health of the infant, this vital relationship is in danger. Our role, as the professionals supporting the dyad through the first stages of development, is to help the dyad to get there, ‘there’ being the potential of the infant development and parental belief in their child, thereby increasing the possibilities of the quality of life for the child and harmony for the family.
BORNTOGETTHERE aims to support and empower families of infants at neurodevelopmental risk, from being born together to being born to get “there”, to the full potential of the infant development and family harmony.
Project structure
BORNTOGETTHERE is centred on the clinical implementation of context-specific, early detection (ED), early surveillance (ES) and early intervention (EI) for infants at high risk of CP in multiple sites including Europe, associated low and middle income countries, and hard to reach populations.
Partners
BORNTOGETTHERE Consortium is composed of 9 partners, 6 coming from 3 EU Member States (Italy, Denmark, Netherlands), 2 from 2 associated countries (Georgia and Sri Lanka) and one from Australia.
Ethics Advisory Board
Ethics Advisory Board (Data and Safety Monitoring Board) is composed by medical physician scientist or clinician from each of the involved countries with expertise in the healthcare quality improvement and clinical trials monitoring, at least one biostatistician knowledgeable about statistical methods for clinical healthcare outcomes and sequential analysis of clinical data; one healthcare economist, and an external independent medical ethics expert not employed by any of the beneficiary organizations, and a one non-scientist representative who will help on bringing the perspectives of the population under study e.g. at least one member of a parent organization. Thee Board is chaired by Domenico Romeo, Policlinico Gemelli
Executive Board
The Executive Board is the ultimate decision-making body of the consortium. It is composed of one representative from each Party and chaired by Andrea Guzzetta, Università di Pisa
Andrea
Guzzetta
Università
di Pisa
Alessandra
Silvestri
Hubstract
Giovanni
Cioni
Fondazione
Stella Maris
Giuseppina
Sgandurra
Università
di Pisa
Jens Bo
Nielsen
UCPH
Gopi
Kitsanamy
Cerebral Palsy Lanka
Foundation
Arend F.
Bos
UMCG
Nana
Tatishvili
David Tvildiani
Medical Universit
Ros
Boyd
The University of
Queensland
Giovanni
d'Errico
Toscana Life
Science
Innovation Management Board
The Innovation Management Board (IMB) is created with the goal to provide support to all the parties in tackling any Intellectual Property Rights generated throughout the project duration and therefore help the consortium to better manage the knowledge and results produced, thus fostering technology transfer and innovation. The IMB supervises the implementation and correct execution of the provisions concerning the management of the IPR, The board is composed by one representative for each party and chaired by Dr. Andrea Frosini, Toscana Life Sciences
Andrea
Frosini
Toscana Life
Science
Pamela
Federighi
Fondazione
Stella Maris
Arend F.
Bos
UMCG
Anina Ritterband-
Rosenbaum
UCPH
Ros
Boyd
The University of
Queensland
Maria Grazia
Carrai
Hubstract
Giuseppina Sgandurra
Università
di Pisa
Sofia
Tatishvili
David TvildianiMedical Universit
Gopi
Kitsanamy
Cerebral Palsy Lanka
Foundation
Dissemination Outcomes
Publications
-
The Early Motor Repertoire in Preterm Infancy and Cognition in Young Adulthood: Preliminary Findings
-
Artificial intelligence and video as a resource to timely discover anomalies in premature babies
-
World Prematurity Day. Raising awareness of premature birth and the impact it can have on families.
-
Early detection of developmental delay in infants born very preterm or with very low birthweight
-
Early motor repertoire of very preterm infants and relationships with 2-year neurodevelopment.
-
Asymmetry in sleep spindles and motor outcome in infants with unilateral brain injury
-
Clinical Implications of the General Movement Optimality Score: Beyond the Classes of Rasch Analysis
-
Early neuromotor performance and later cognition in children born preterm
-
Motor development in children 0-2 years pre- and post-LTX, a prospective study
-
A comparison of the early motor repertoire of very preterm infants and term infants
-
Absolute reliability of the gait outcomes assessment list (GOAL) questionnaire
-
Early Intervention for Children Aged 0 to 2 Years With or at High Risk of Cerebral Palsy
-
“Fidgety-like movements” in extremely preterm infants - a new entity of spontaneous movements.
-
“BornToGetThere: implementation of uniform care for infants at high risk of cerebral palsy”